Jakes 1st surgical treatment

Lots to go over...its been a busy day but everything went soooo smooth. Thanks to the Ronald McDonald House, we were able to come down last night and stay. We then just had a quick drive to UCSD. ((Seriously, if there were ever a charity you wanted to volunteer or donate to, this one is amazing. They provide so much for us. I would be a very stressed out mama without them!))
Jake was treated at UCSD by an interventional radiologist Dr. Pokboz. He loves Jake, I think its because he mostly treats adults. We sat down with him before the procedure and he said he was going to do a few injections in to Jakes bottom to shrink some of the unwanted veins. He injects alcohol into the veins and they then shrink up over the next few weeks. There were several risks but he felt the benefits outweighed the risks and that this was one of the best treatments to start out with. He then went back for Jakes MRI, flushed colored stuff through Jakes veins and was able to see where he wanted to directly work. Because there is so much going on in Jakes abdomen, bottom, and leg he needs to be careful where he was placing the injections. The MRI lasted about an hour, the Sclerotherapy lasted about another hour, then I was able to go up to recovery with him. The anesthesiologist was from Children's Hospital. She called in a nurse from Children's to be with Jake for the entire morning, through the whole procedure, since UCSD doesn't see kids often. She was great. After Jake started to wake up, he was given pain medication. Dr. Pokbaz came in and went over everything he had done. He even did a small injection in Jakes big ankle, hoping that helps with the swelling of it. Everything in his bottom and leg were very very swollen and very hard, which is expected. It should be this way for the next few weeks. The doctor said it may be uncomfortable for him to sit for the next few days because of the location of the injections.
After he was in recovery for an hour, a transport team from Children's came to take him. We loaded up and I went along for the ride as well. Jake did great. Was awake the entire time and not a sound out of him. Once we got to the hospital room, he took a great nap, woke up in a little pain, was given more meds, and took another nap. Jake woke and ate a HUGE dinner. Mac and cheese, peas, applesauce and cheerios. Along with 2 bottles. His pain tolerance seems good. He was even sitting up. He just wants to be held and seems to have very restless legs. They are giving him Tylenol around the clock and may give him something stronger through the night to keep him comfortable. My mom is amazing enough to stay with him for half the night tonight, so I can get some rest at the RMH...which Im not because Im doing this. :)
I was concerned about getting him in his carseat tomorrow to come home, so were going to bring it up to the room and see how he does sitting in it. Praying he can do it, its a long drive. We will be able to go home tomorrow, Im pretty sure, and will be back for a post-op in a few weeks. If Jake takes this Sclerotherapy well, Dr. Pokboz wants us back in 6 weeks to do it again. Makes me sad that Jake will have to go through it again, but Im learning this is what his syndrome is about. He is in great hands. Dr. Pokboz also wants to send Jakes MRIs to a doctor friend of his in Denver who specializes in these cases to get a second opinion in treatment options. Looking foward to going home. Missing Bryce. Steven heads out early Monday morning for the east coast with some work buddies for some classes. Just the boys and I for the week as we prepare to celebrate both of their upcoming birthdays!!!
 Thanks for the prayers. We have a tough little man!

Wikipedia had a pretty good description of Jakes treatment today
http://en.wikipedia.org/wiki/Sclerotherapy