Baby Jake- 5/29/2010
by Erin Castellano on Saturday, May 29, 2010 at 11:15am
Jake is here! He is doing well. Jacob Anderson Castellano arrived 5/27 at 12:09pm. He weighed 8.8lbs. He came out screaming. C-section went well.
Jake is in the NICU. He is not allowed out of NICU to nurse or be in my room with me. As soon as I was able to, I was out of bed and visiting him. It seemed like forever before I was able to do that, but it was wonderful when I finally did get to see him. The only visitors allowed to see him are parents and grandparents, who must be accompanied by a parent. They are very strict with their rules.
He is well. He had a hard time feeding on night one, so he ended up having to be tube fed. He pulled the tube out twice yesterday and is now bottle feeding formula again until my milk comes in. He is a hungry boy every 3 hours on the dot. I have been pumping every 3 hours, trying to get my milk to come in, which is frustrating, but I know it can take a few days before it does. They have been running tests on Jake since Thursday night. Yesterday he had a head to toe ultrasound. It lasted about 2 hours and he was exhausted afterwards. They were concerned with any bleeding near his brain but it turned out there were no problems there.
Jake does have three Port Wine Stains on his right leg. His right abdomen is swollen and his right butt cheek is swollen and large. Looks like a mass under the skin. His right leg is swollen also. The doctors are looking into a few lymphatic related syndromes and are contacting a few specialists, but nothing is set in stone. Due to the holiday weekend, we wont have much more information until next week.
Overall, Jake is doing well. He is one of the largest babies in NICU because many are preemies. He is breathing room air, not on ventilators, pooping, peeing, crying, moving, eating, looking around, strong heart and lungs, and overall healthy. He will be in the NICU for a while tho. Once a diagnosis is made, a plan of action will then be the next thing we discuss. I don't think the outcome will be life threatening, but it is serious and something he will deal with for a long time, if not throughout his life. They are most concerned about the internal portion of the lymphatic problem because it is near organs.
I will be discharged tomorrow or Monday. From here, we have a referral to go to the Ronald McDonald House (Thank you Dave and Deb). We will stay there while Jake is in the NICU.
I will update again next week. Until then, please pray for Jake. The NICU can be a scary place, but we have a tough little guy. I am hoping to go in this afternoon for some cuddle time, which I have not had a chance to do yet. He has been under the lamp for Jaundice so they want him there rather then being held. Understandable but hard.
Thank you everyone for all of your thoughts and prayers. I don't have enough Thank Yous!
I will also post some new pictures of Jake in the Baby Castellano #2 file. I know some are curious as to how things are looking.
Jake is in the NICU. He is not allowed out of NICU to nurse or be in my room with me. As soon as I was able to, I was out of bed and visiting him. It seemed like forever before I was able to do that, but it was wonderful when I finally did get to see him. The only visitors allowed to see him are parents and grandparents, who must be accompanied by a parent. They are very strict with their rules.
He is well. He had a hard time feeding on night one, so he ended up having to be tube fed. He pulled the tube out twice yesterday and is now bottle feeding formula again until my milk comes in. He is a hungry boy every 3 hours on the dot. I have been pumping every 3 hours, trying to get my milk to come in, which is frustrating, but I know it can take a few days before it does. They have been running tests on Jake since Thursday night. Yesterday he had a head to toe ultrasound. It lasted about 2 hours and he was exhausted afterwards. They were concerned with any bleeding near his brain but it turned out there were no problems there.
Jake does have three Port Wine Stains on his right leg. His right abdomen is swollen and his right butt cheek is swollen and large. Looks like a mass under the skin. His right leg is swollen also. The doctors are looking into a few lymphatic related syndromes and are contacting a few specialists, but nothing is set in stone. Due to the holiday weekend, we wont have much more information until next week.
Overall, Jake is doing well. He is one of the largest babies in NICU because many are preemies. He is breathing room air, not on ventilators, pooping, peeing, crying, moving, eating, looking around, strong heart and lungs, and overall healthy. He will be in the NICU for a while tho. Once a diagnosis is made, a plan of action will then be the next thing we discuss. I don't think the outcome will be life threatening, but it is serious and something he will deal with for a long time, if not throughout his life. They are most concerned about the internal portion of the lymphatic problem because it is near organs.
I will be discharged tomorrow or Monday. From here, we have a referral to go to the Ronald McDonald House (Thank you Dave and Deb). We will stay there while Jake is in the NICU.
I will update again next week. Until then, please pray for Jake. The NICU can be a scary place, but we have a tough little guy. I am hoping to go in this afternoon for some cuddle time, which I have not had a chance to do yet. He has been under the lamp for Jaundice so they want him there rather then being held. Understandable but hard.
Thank you everyone for all of your thoughts and prayers. I don't have enough Thank Yous!
I will also post some new pictures of Jake in the Baby Castellano #2 file. I know some are curious as to how things are looking.
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