Baby Jake Update #3- 26.4 weeks
by Erin Castellano on Tuesday, March 2, 2010 at 3:44pm
I'm writing this update with a bit of frustration. Its been an extremely LONG day and does not feel very successful. We met with our surgeon at 9am. She was a bit out of it and looked as if she was half asleep. I kept telling Steven we cant expected too much, they don't have hair and make-up people like the Grey's Anatomy stars, but none the less, her bedside manner was kinda crummy. She didn't give us much information about how Jake's surgery would go. She said they would have to wait until he arrived, take pictures then and make a plan of action from there. She also said that because the tumor is cystic, she was hoping that it would move downwards in Jake's abdomen as he grows. She had not read our file before our meeting, so we spend most of the 20 minutes with her in silence so she could read our file. So again, its a waiting game.
Afterward we headed over to the hospital for the ultrasound. The radiologist asked us what we thought of the surgeon. She reassured us that yes, her bedside manner is horrible, but shes an incredible surgeon. The radiologist said things looked pretty much the same as before. The tumor does not look as if it has grown drastically. The umbilical cord is still enlarged with a cyst on it, but it didn't seem like it was anything to be concerned about. The only difference is the internal portion of the tumor, the cysts were fluid filled. This was good because the tumor gives way to the organs, rather then pushing on them. She noted that was the only difference since the last ultrasound. Jake weighs 2.4 lbs and is in the 59th percentile. Growing good and strong. Steven mentioned that we were concerned about coming in for an ultrasound and them saying they needed to deliver that day. The radiologist said that is something we need to be prepared for. Its so unknown. (Frustrating).
After the ultrasound we met with the doctor. She was fantastic. She put in a request for Jake to have an ecocardiogram. They will check his heart and everything around that to make sure it is all pumping and working normally.
Our last appointment was supposed to be with the NeoNatoligist in the NICU. I have so many questions about Jake's care after he is born and about my delivery and recovery. I was really looking forward to this meeting, but the doctor was called away and couldn't meet with us. Granted, we didn't find this out until after we had waited for over an hour. Seriously, don't piss off a pregnant woman. So that will be rescheduled.
All in all, not too much new news. My mom said "No news is good news", so I'm trying to remember that. The picture below is of Jake, spine at top of picture. Head on right and rear on left. The external portion of the tumor is on the left, cystic looking. The dark parts are the tumor.
Next appt is on the 16th.
Thanks for everyones thoughts and prayers!!!
Afterward we headed over to the hospital for the ultrasound. The radiologist asked us what we thought of the surgeon. She reassured us that yes, her bedside manner is horrible, but shes an incredible surgeon. The radiologist said things looked pretty much the same as before. The tumor does not look as if it has grown drastically. The umbilical cord is still enlarged with a cyst on it, but it didn't seem like it was anything to be concerned about. The only difference is the internal portion of the tumor, the cysts were fluid filled. This was good because the tumor gives way to the organs, rather then pushing on them. She noted that was the only difference since the last ultrasound. Jake weighs 2.4 lbs and is in the 59th percentile. Growing good and strong. Steven mentioned that we were concerned about coming in for an ultrasound and them saying they needed to deliver that day. The radiologist said that is something we need to be prepared for. Its so unknown. (Frustrating).
After the ultrasound we met with the doctor. She was fantastic. She put in a request for Jake to have an ecocardiogram. They will check his heart and everything around that to make sure it is all pumping and working normally.
Our last appointment was supposed to be with the NeoNatoligist in the NICU. I have so many questions about Jake's care after he is born and about my delivery and recovery. I was really looking forward to this meeting, but the doctor was called away and couldn't meet with us. Granted, we didn't find this out until after we had waited for over an hour. Seriously, don't piss off a pregnant woman. So that will be rescheduled.
All in all, not too much new news. My mom said "No news is good news", so I'm trying to remember that. The picture below is of Jake, spine at top of picture. Head on right and rear on left. The external portion of the tumor is on the left, cystic looking. The dark parts are the tumor.
Next appt is on the 16th.
Thanks for everyones thoughts and prayers!!!
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